Participants Invited to Take Survey on Patience and Well-Being in Parkinsonís Disease

Share

(March 10, 2015)—The Parkinson Alliance invites people living with Parkinson’s disease to participate in our survey-based research project entitled “Patience and Well-Being in Parkinson’s Disease” via our affiliate website DBS4PD.org.  If you have Parkinson's disease, you are eligible to take our survey.

There are two ways to complete the survey on Patience and Well-Being:
•    Online at DBS4PD.org
•    Call us at 800-579-8440 to request a hard copy that you can mail back to us

In the most basic sense, patience is the propensity of a person to wait calmly in the face of frustration, adversity, or suffering.  For the general public, patience has been found to allow the person to cope more adaptively with frustrations, and facilitates positive interpersonal interactions.  Evidence has shown that patience is positively related to subjective well-being, positive coping, and virtues.  

We chose to study Patience and Well-Being because both motor and non-motor symptoms can adversely impact many, if not all, facets of daily experiences for individuals with Parkinson’s disease (PD).  The topic of patience as it relates to one’s well-being in the face of Parkinson’s, however, has not been explored and it may be a key ingredient for improved well-being.  The purpose of this study is to better understand patience in the lives of individuals with PD, particularly pertaining to the relationship between patience and well-being.

This is an important research endeavor and participation is important because the data collected will benefit individuals with PD and carers as well as treatment providers.  Participation is completely voluntary and all information provided by survey participants will be kept strictly confidential.  

The data collection for this report will conclude on June 15, 2015; however participants are urged to send back the survey as soon as possible.

For more information, visit DBS4PD.org.

Click for a printer friendly version

Back to top