Participants Invited to Take Survey on Cognition and Parkinsonís Disease
(January 11, 2016)—The Parkinson Alliance invites people living with Parkinson’s disease (PD) to participate in our survey-based research project entitled “Cognition and Parkinson’s Disease.” The objective of the present study is to deepen our understanding about the perspective of individuals with PD pertaining to cognition and its relationship to day-today activities. If you have Parkinson's disease, you are eligible to take our survey which is now accessible online at DBS4PD.org
There are two ways to complete the survey on Cognition:
• Online at DBS4PD.org
• Request a hard copy by calling The Parkinson Alliance at (800) 579-8440
Cognition refers to thinking skills. Changes in thinking skills are common in People with Parkinson’s, particularly involving slowness of thinking, memory, “word-finding difficulties”, and managing more complex information. Significant cognitive difficulties can affect day-to-day functions, engagement in hobbies, treatment outcomes, and quality of life for individuals with PD. Although our understanding about changes in thinking skills for those with PD continues to increase, there is limited understanding about how individuals in PD perceive cognitive difficulties and the related impact on “everyday activities.” In this study, we will investigate cognition and related variables from the individual’s perspective.
When individuals with PD participate in this survey, their "voice" will be heard and their participation can help others with PD, carers as well as treatment providers. Participation is completely voluntary and all information provided by survey participants will be kept strictly confidential.
The data collection for this report will conclude on June 15, 2016; and participants are urged to complete the survey as soon as possible.
To participate in this important research endeavor, individuals can visit DBS4PD.org and complete a survey online.
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