Participants Invited to Take Survey on Vision and Parkinsonís Disease

(July 12, 2017)—The Parkinson Alliance invites people living with Parkinson’s disease (PD) to participate in our survey-based research project entitled “Vision and Parkinson’s Disease.”  

Eye movements and visual processing changes occur for individuals with PD, sometimes in subtle ways and sometimes in debilitating ways.   Changes in vision may take the form of blurred vision, double vision, vision fatigue, depth perception and visual scanning difficulties, changes in color vision, hallucinations, eyelid drooping or involuntary closing, among other symptoms. There is very little research to date looking at how changes in vision impact the well-being of individuals with PD.  The objective of the present study is to deepen our understanding about changes in vision and its impact on day-to-day activities and quality of life from the patient’s perspective.  

To take our survey, either:
1.    Go to DBS4PD.org to participate online OR
2.    Call us at 800-579-8440. We will mail you a copy of the survey to complete and mail back to us.  We will also provide a self-addressed, stamped envelope.

When individuals with PD participate in this survey, their "voice" will be heard and their participation can help others with PD, caregivers, as well as treatment providers.  Participation is completely voluntary and all information provided by survey participants will be kept strictly confidential.   

The data collection for this report will conclude on December 1, 2017; We would like ALL individuals with PD to participate, including individuals with and without changes in vision.